Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Monday, 11 June 2012
Inspirational People...
Harry attended a press call today at a school in Wakefield, where he met some of his fellow Olympic Torch bearers. It was an honour for me to be in a room with such inspirational people. Harry was the only child amongst the adults and I was so proud of him, dealing with the photographers, media etc. That's my boy :) xx
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