Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Tuesday, 26 June 2012
Olympic Torch Relay...
Wow what an incredibly emotional day that was, watching Harry carry the Olympic Torch through Wakefield. To hear 100's of people who have turned out to line the streets chanting and shouting "Harry, Harry, Harry" is something I will never ever forget and we'd like to take this moment to thank everyone of his family, friends and complete strangers who turned out to cheer Harry on.
In the evening, we drove to Sheffield for the evening celebration where Harry appeared on BBC Look North alongside another torch bearer, Simon Brown and soldier wounded by an Afghan sniper. What an inspirational man Simon is & thank you Simon for being so great with Harry and sharing your story with him.
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