Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Friday, 8 June 2012
Radio Star!!
Thank you to BBC Radio Leeds who invited Harry on Thursday 7th June to a chat about carrying the Olympic Torch. Harry was confident in his interview and enjoys talking on the radio! Jake Yapp the presenter was very funny and put Harry at ease straight away.
We then had a meeting with a producer from BBC Look North about filming on being a torch bearer. More details to follow. Very exciting...
Well done Harry you did fantastic as always xx
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