2011

Harry has had yet another busy year, aside his different hospital appointments, he's also got up to some adventures. He spent a long weekend with Hayley in Bexhill on Sea which included Zumba, a psychic event and a parachute jump.. (Harry didnt jump, we just watched!!)

Hayley visited us here in Yorkshire, which was fun on the Canal boat, which was seen on Hayley's documentary on Channel 5's Extraodinary People.

Harry has raised money for both the Progeria Reunion and for Great Ormond Street Hospital of which he is a patient.

Harry & Hayley also travelled to Russia, what an adventure that was!! but a worthwhile visit all the same.

October was the Progeria Reunion and Harry met up with all his friends, including Christian, who sadly passed away from Progeria in December. Harry was so upset as this was his first experience in losing one of his friends who are so very special to him.

Harry helped turn on the Christmas lights in Huddersfield which was a great evening.

The big announcement of the year was that Harry will be representing Yorkshire by carrying the London 2012 Olympic flame on the 25th June 2012.......Watch this space..

Harry's next big milestone will be turning 13 in February 2012. I cant believe my little man will finally be a teenager...Wow

London 2012

Yesterday 8th December was a very exciting time in our home, Harry has been succesful in the nomination process to be a torch bearer in the Olympic Games in London 2012. Harry received his conditional offer and we are so very proud of him. Harry will get his moment to shine on Monday 25th June 2012



What an amazing feeling knowing that our son will be part of British history and represent his town, community, and most importantly family & friends.

OWN Network – Mystery Diagnosis – Too Young to Be Sick with Harry Crowther & Sadie Mills Jones – Achalasia – More Behind the Scenes

OWN Network – Mystery Diagnosis – Too Young to Be Sick with Harry Crowther & Sadie Mills Jones – Achalasia – More Behind the Scenes


A short clip of the film Harry made for Mystery Diagnosis back in October 2010

Moscow, Russia

Back in October, Harry, myself, Hayley & Kerry took a trip to Moscow, Russia to appear in a programme about Progeria. We met a 16 year old girl and a 20 year old young man with yet another believed form of Progeria which differed very much to Harry & Hayley's form. It was a interesting vist and it was great to visit Russia for the first time even if it was freezing!!!!

You can watch the programme in full at the attached link

Christmas Lights

 

Very Proud of Harry tonight as he represented Mirfield & Huddersfield in switching on the towns Christmas Lights along with 3 other inspirational children, Cobie, Callum & Ben. Well done so very proud of you

Teeth!!!

With Progeria comes a small mouth & jaw which leads to severe over crowding of the teeth. As Harry's Orthodontist puts it " Harry you have too many cars in your carpark".

We've just had another visit to the Orthodontist and Harry has one more baby tooth to loose and his top 2 canine adult teeth have absolutley no room to go anywhere so they will burst through out of the top of his gums on both sides. This means that Harry will feel some uncomfort and look odd until they are fully through and then they will be removed. You can already see the huge white teeth just below his gums as they bulge and its only a matter of time before they make there unwanted apperance.

Harry faces years of visits to the dentist and Orthodontist to try and resolve his overcrowding.

He will at some point get fed up of this Im sure and then the decision will be Harry's as to wether the work in his mouth is to help his apperance on a cosmetic level or its a need for him to be able to eat and function etc.

Only time will tell!!!

What I will say is that his dentist, Esther and his Orthodontist, Mr. Cook are so fantastic with Harry. Never rushing him and answering any questions he has and they always take time to talk to him and put him at ease. Im so glad Harry does not have a fear of the dentist!!!!

Reunion

From October 27th to 1st Nov our family attended the 2nd UK Progeria Reunion held in Kent.
To see Harry's face as he saw all his friends again was amazing & what was equally amazing was that Harry's dad John his big sister Emma & big brother Jack came too. Team Crowther sharing this reunion :)

We all said hello to little Lucy from Ireland & her mummy & daddy and we welcomed Dean from Birmingham & his family.
Lucy is the youngest with Progeria at just 2 years old & Dean is the oldest at 20 years old.
Dean was so inspiring as he drives a car, has tattoos & has a stunning girlfriend, Emily.
This gave everyone hope that these amazing children can lead ordinary lives. We had a great few days with visits from various animals & wizard of science & fire eaters all topped off by an amazing halloween party with a fantastic live band. Blues Brothers Little Brothers.

Thank you again to everyone who helped donate to make this reunion possible & much love as always to Hayley & gang for organising yet another wonderful reunion.

Will finish this post remembering the children who could not join us physically but were there with us spiritually & whose mums attended the reunion also xxx