Paediatric Leg Gaiters

Harry received his leg gaiters from Orthotics yesterday. He has to wear them for 30 minutes a day to support, strengthen and hopfully straighten his tight hamstrings. We will start with just 5 minutes a day for the first week and then gradually build up the time. They are bigger than I imagined and it is yet another reminder that he has a Progeria. They dont bother Harry so I guess that's the most important thing.

They did it!!

Congratulations and lots of love to Charlotte & Becky from Harry & Hayley as the girls crossed the finishing line after running 272 miles from Harry's home in Mirfield on the 5th April 2012, Yorkshire to Cranbrook, Kent 14th April 2012 the home of Hayley's sister Charlotte.

Over £5,000.00 has been raised for the Progeria Family Circle UK

Harry's dad John joined the girls for the final 6 miles too. So proud of him for running 36 miles in total. Love you John/Daddy xx

Harry & The Olympic Torch

Meet the outstanding 66 year old Pat who is the oldest known Olympic torch bearer in Kirklees, having her photo taken with Harry who at 13 is the youngest in Kirklees. Pat is such an inspirational lady, who runs marathons for charity. We would like to wish her all the best for when she runs the London Marathon on the 22nd April 2012.

Ten in Ten

Thursday 5th April was the 1st Marathon in a long 10 days of 10 Marathons!!!

The guys did amazing

https://www.facebook.com/pages/Ten-in-Ten/125857620871992

Progeria Family Circle UK Marathon Day 1

Harry's Dad, John. Hayley's sister Charlotte and friends Becky & Tim set off from our house today on the first of 10 marathons in 10 days. I am so proud of my husband who ran an outstanding 29 miles today. The most he has run is 13!! A great big thank you to Charlotte, Becky & Tim for motivating John and keeping him going. Harry is so proud of his dad as I am proud of all of them for running their legs off in support of Harry and Hayley and children with Progeria

Fun & Physiotherapy

Today, at last is a lovely, warm spring day and Harry's enjoyed some fun and physio in his hot tub. This is the best type of excercise for children with a Progeria as the water is warm and gentle on their joints.

Harry spends more time under the water, doing somersaults and headstands, something which is impossible for him to do out of water on dry land. I love watching him have fun in the water & for a short while I can forget that his joints are stiff and cause him to ache. He should have been a dolphin :)

Harry's dad in training for Run!!!

Harry's dad John is training really hard so that he can set off on the challenge with Charlotte and Becky when they commence their mammoth run on Thursday 5th April. John is very much hoping to at least run with them for 10-20 miles

Over a £1000 has been raised so far for the Progeria Family Circle. Thank you to those who have so very kindly donated. If you would like to donate please follow the link www.progeriafamilycircle.co.uk to the right of this post. Thank you

Good luck John, Charlotte & Becky xxxx