Wow! It’s been a while since we last blogged about Harry.
Harry is now 24 years old and an uncle to not just Miss Isla, who is 5 but also her identical twin sisters, Sienna & Olivia who will be 2 in April and 6 month old Ezra.
In May of this year Harry will be Best Man to his brother Jack, who is marrying Anneliese, so as a family we are all looking forward to their big day.
Harry has lost friends with Progeria over the past few years and we remember with love Raina, Claudia, Ashanti & Evra all with whom we have spent time with at our Progeria Family Circle reunions.
The last reunion was hosted by Claudia in Portugal in 2018. Harry flew alone from our family holiday in Florida to join his friends in Portugal for a few days of fun, laughter and most importantly LOVE.
Due to covid and costs there has not been another reunion, which is heartbreaking. Harry has visited his friends Michiel and Amber in Belgium though before the world was shut down due to COVID.
Hopefully another reunion will be held soon.
Health wise Harry is doing ok, still having regular appointments, he has one coming up at the bone density clinic and hopefully the 3 iv bisphosphonate infusions have helped reduce his risk of bone fractures. The side effects were pretty horrid with flu like symptoms, headache and in particular eye pain which Harry found tough. Thankfully it didn’t last long and he’s back to his usual, cheeky self.
Thank you for continuing to support Harry and will blog again soon xx