Saturday, 29 May 2010

Harry, Hayley & ITV1's This Morning show

Harry & I were invited on to ITV'1 This Morning show to talk about Harry's Progeria and to raise awareness for his disorder. Everyone was so lovely and Harry met lots of TV stars...

There was a very big suprise in store for Harry when the show secretly arranged for the beautiful Hayley and her mum, Kerry to come onto the show and meet. Harry's face was a picture.

Harry & Hayley then had a ride on the London Eye, eating candyfloss... next we had lunch with them and then they played in the park beneath the London Eye.

It was soon time to say our goodbyes but we had an amazing day and it was so amazing to finally meet Hayley & her wonderful mum, Kerry.

Thank you to everyone concerned at ITV1's This Morning for such a amazing day.

Monday, 17 May 2010

Pirate Testimonials


Read our testimonial along with the other amazing GOSH families

Sunday, 16 May 2010

Harry's Facebook group

I have been really touched by all the lovely, positive comments that have been left on Harry's facebook group page from kind people from all over the world.

Below Ive added just a few to share on this blog.

Well Harry, yesterday i had my GCSE French Speaking Exam! and guess who's story was stuck on the wall, straight in front of me, yours! Gosh did it make me smile seeing you on your skateboard, happy as ever! I was so close to giving up but just seeing your brave face up there inspired me too carry on trying and get the ...best grade i possibly could! You change so many people's lives and inspire each and everyone of us, So thanks Harry, without you i couldn't have got that grade A! xxxxxx

Hi Harry, just wanted to let you know you are always being thought of (all the way in NYC). You are an inspiration to so many regardless of only being here in this world for such a short period. May God always shine his light upon you. Keep that smile on your face always, it lights up the world :)

Hello Harry you are very special to the world! I see that you are a strong and brave boy has hope that God will show the masters of medicine to cure you remain so strong and brave taught every day all over the world and the value of life! God bless! Kisses my angel

You have teach me a lot today and I want to say Thank you. Im an Acrobat, I have been in pain and frustration because of my back... God put you in my way, I know it!! You are very brave, enjoy every second of your life Harry! I really wish you the best and you are in my thoughts...Big Hug and kiss for you.

There are so many more inspiring message likes these that I find totally amazing and heart warming. To read more check out Harry's page at

Tuesday, 11 May 2010

Courage Award

Harry has been nominated for a 'Courage Award' by the Daily Examiner for their annual event the Examiner Community Awards 2010. Harry has been shortlisted for this award and we will know if he has won at the Gala Awards ceremony and gala dinner on Monday 7th June

We are so thrilled that Harry has been nominated and even if he does not win it is an achievement in itself for Harry's to be considered worthy to be nominated.

Saturday, 8 May 2010


Harry and I have just returned from a week in Majorca courtesy of Great Ormond Street Hospital for Children, First Choice Holidays and The Pirates Adventure.

Harry had the best time and enjoyed meeting the other children and their families who are also patients at Great Ormond Street

Harry and his friends attended the Celebrity Premier opening of the Pirates show as VIP guests and have had an amazing time..

I can not begin to thank all the people involved for an amazing week full of surprises, fun and laughter

Brilliant xx