Wednesday, 31 March 2010

Hospital Visit

Harry has an appointment on the 13th April at the Hospital with a specialist in Rheumatoid Arthritus to see if this is the cause of Harry's pains in some of his joints. His left leg at the knee is especially bothering him & he is asking for more painkillers through out the day especially during school and in an evening before his bed time. I hope that we will get some answers to Harry's joint pain and that something can be done to ease his discomfort. I dont like that he has to take pracetamol & ibuprofen all the time.....

Monday, 15 March 2010

Games Lesson

The Pre-School in which I work is next to the playing fields of Harry's school.
Monday afternoons is Games. I watched as Harry joined his classmates for a game of Tag rugby. This is where you have a belt with two tags attached and play with a rugby ball. The idea is to pull off the tags on the opposing team. A much safer way to play rugby....

It has been a cold day today and I watched as Harry played in his oversized bright red games jumper which first belonged to his sister then his brother. I cant imagine it ever fitting Harry & as he leaves Junior school in July I dont suppose I'll ever find out.

Harry had forgot to put on his gloves and I could see the sleeves of the red jumper hanging over his hands. Harry has Raynauds disease and I watched as he kept on blowing on his fingers and rubbing his hands together to try and keep them warm and to keep the circulation moving.

Harry stood for a while and I obsereved him rolling his neck & shoulders which I new were beginning to ache. I watched as he walked slower and limped slightly as his legs began to ache. Yet he still carried on smiling and enjoying the games lesson.

I watched with admiration as a friend of his fell and Harry rushed over to support his crying friend whilst still blowing on his hands to keep them warm.

I watched as he went over to his games teacher and I obsereved her touch him gently on his back to reassure him it was ok for him to go in as his hands were cold & painfull and his legs, neck & shoulders were aching. She gently removed the tags from his belt and I watched as Harry limped indoors.

This for me today has been yet another reminder of Harry's condition and how it effects his everyday life. He loves Games & PE and will join in till his body tells him otherwise. He makes no fuss as he asks the teacher if he can sit out. He is my very brave 11 year old with a premature aging disorder that he just copes with and puts up with and for that I have so much love and admiration for him.

Monday, 1 March 2010

Aches & Pains

Harry has his 6 monthly appointment with his pediatrician 4th March. His physiotherapist has hopefully written to him for a referal to a specialist in chronic pain/ arthritus etc. Harry is starting to complain more and more of pain in his legs, mostly his left leg and now his left knee, both wrists. I dont like to keep giving him paracetamol and ibuprofen. There must be something else they can do. Its not fair he suffers with joint pain at only 11 years old. He never normally complains but as soon as I picked him up from school today he said his knee was hurting.. I wish I could take the pain away.