Hi, Im Harry Crowther, Im 18 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA).
Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Thursday, 3 June 2010
Harry has just spent 2 hours filming with 'Globo TV Brazil' and has had the best time. Thank you so much to Marcos & Paulo for being so kind and giving Harry a wonderful experience and thank you for sharing Harry's story.