Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Thursday 10 March 2011

Mystery Diagnosis

We have now recieved the dvd of Harry's story to be shown on Discovery Health. The show is called Mystery Diagnosis.

We have watched it and are so pleased with the show. Thank you to everyone involved at One True Enterainment and the Oprah Winfrey Network for allowing us to tell Harry's story of his diagnosis of Atypical Progeria Syndrome

We will add the dvd to my blog page soon

2 comments:

suzanne9 June 2011 at 02:27
I just watched the program and Harry, you're a FANTASTIC kid. I think you've got a brilliant mum and dad, and gran of course. Good for you lad, your personality and character are wonderful and I wish all of you the very best of everything always. Sue
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Sharron25 July 2011 at 14:52
Hello Sue

We're so glad you enjoyed Harry's story and thank you so much for dropping by. Warm wishes to you
Sharron (Harry's Mum)
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Atypical Progeria Syndrome Harry's story

Harry

Thursday 10 March 2011

Mystery Diagnosis

2 comments:

Harry with his Medal for Meritorous Conduct

Harry - Dec 2009 aged 10 years & 10 months