Hi, Im Harry Crowther, Im 19 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA).
Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Saturday, 19 November 2011
Very Proud of Harry tonight as he represented Mirfield & Huddersfield in switching on the towns Christmas Lights along with 3 other inspirational children, Cobie, Callum & Ben. Well done so very proud of you