Hi, Im Harry Crowther, Im 18 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA).
Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Sunday, 6 May 2012
Harry's 1st TV debut!
Please tune in to watch Harry on SKY Channel 255 - Home & Health+ on the show Mystery Diagnosis on Wednesday 9th May at 1.00am. Thank you xx