Harry's Moment to Shine is almost here. He is very excited for Monday 25th June and will be running with his Olympic torch from Bond Street to Wood Street in Wakefield.
He will also be appearing on a special show from Sheffield with BBC Look North at 7pm following his relay.
Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Friday, 22 June 2012
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