Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Monday, 15 October 2012

The X Factor - Thank you HTAFC

One word WOW! What a great night Harry had at the X Factor result show, meeting the stars and experiencing a live show and the secrets you don't see on the Television :)

Harry met judge Louis Walsh who called Harry 'Sir' and some of the X Factor contestants who all were so nice and took the time to pose for a photograph with Harry. We had the best 2 seats with Simon Cowells' name on and Harry's written underneath, such a privilege to be a VIP Guest.