Hi, Im Harry Crowther, Im 19 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA).
Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Thursday, 2 October 2014
"It's not goodbye, it's see you again soon"
Harry giving Claudia a kiss and a cuddle the night before she flew home to Portugal.
These cuddles and kisses are so important to the children. It's not goodbye it's see you again soon...