Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA).
Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Monday 3 August 2015
Harry & Zeus
On the 4th July, we welcomed Zeus, a border terrier puppy for Harry. Zeus has settled well and is an honorary member of Team Crowther.
They have a great friendship as you can see from the photo. They love to snooze together :)
I watched Harry's story on mystery diagnosis. I just wanted to reach out to you and tell you how much of an inspiration you and your family are. Harry is such an amazing guy, and seeing your family's incredible love for each other really moved me. Your family is a great lesson on how powerful love is. Your strength and optimism is, awesome. Thank you for sharing your journey.
I watched Harry's story on mystery diagnosis. I just wanted to reach out to you and tell you how much of an inspiration you and your family are. Harry is such an amazing guy, and seeing your family's incredible love for each other really moved me. Your family is a great lesson on how powerful love is. Your strength and optimism is, awesome. Thank you for sharing your journey.
ReplyDeleteHello and thank you so much for your lovely comments. Im so glad that your are sharing harry's journey with us.
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