Hi, Im Harry Crowther, Im 18 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA).
Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Monday, 20 September 2010
Ambassador for Mirfield
I am very proud to announce that Harry has been chosen and sharing the accolade with Sir Patrick Stewart to be an Ambassador of Mirfield & will be presented with his award on Sunday 26th September at a Civic Ceremony.