Harry

Harry

Thursday, 8 May 2014

Progeria Reunion - Fundraiser

On the 10th May 2014 Julia, Lloyd and Jack will be taking on the challenge of the World’s Largest Assault Course - 20 miles and 200 obstacles to raise much need funds for Progeria UK to enable families affected to attend the essential event ‘Progeria Reunion 2014’ in Denmark. This event will last a few days in which the parents can share their experiences, find out about medical developments and comfort each other, and the children can have fun playing together. Past reunions have taken place Germany, Belgium, Italy and the Netherlands and England and this year a family from Denmark will be hosting the Reunion for the first time. The flights for the UK families are going to cost in the region of £5000 and will be funded by Progeria UK

Progeria is a fatal, genetically determined disease of childhood characterised by dramatic, premature aging that occurs at about seven to ten times the normal rate of aging. Because of this accelerated aging, a child of ten years will have similar respiratory, cardiovascular, and arthritic conditions that an 80-year-old would have. Progeria is the most radical of the ageing illnesses. There are currently around 80 known cases of Progeria in the world, 24 of which are in Europe, and just 5 in the UK. As the worldwide Progeria community is so small it is essential to the families that they stay in regular contact, and for the children that they see others who share their condition.

This charity is very important and close to our family and friends, Harry Crowther, Julia's Nephew, Lloyds Cousin and Jack's Brother has Atypical Progeria… find out more about Harry, his friends and life on his Facebook group ‘Atypical Progeria Syndrome - (Non Classical Progeria)’

What are we doing that deserves your support?The Rat Race Dirty Weekend is 20 miles of off-road running with 20 zones of obstacles, totaling some 200 obstacles across the full course. It’s a big’un. There’s no shirking the distance over 20 miles. Add 200 obstacles and it’s an absolute brute. The obstacles are distributed across 20 zones so that the course is permanently punctuated with up, over, under, through, crawl, climb, get wet, jump, land, get muddy, bam. It’s relentless!

Donating is so easy. You can text DIRT52 (and the amount you'd like to donate £1, £5, £10 etc) to 70070

Thank you & much love xxx



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