Hi, Im Harry Crowther, Im 19 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA).
Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Tuesday, 13 May 2014
Huge congratulations and thank you to Harry's brother Jack, his aunty Julia, cousin Lloyd and friends Nick and Michael who completed the Rat Race and raised a fantastic £1025.88 for our charity Progeria UK
You guys ROCK!